DALLAS- 01

Children's Medical Center Dallas
12th floor Neurology, 6300 Harry Hines Blvd. Dallas, TX 75235

Susan T. Iannaccone, MD, FAAN

Director, Neuromuscular Disease and Neurorehabilitation

Professor of Neurology

UT Southwestern Medical Center

Phone: 214-456-5220

Fax:  214-456-5210

Email:  susan.iannaccone@utsouthwestern.edu

Mariam Andersen, M.A., CCRP

Clinical Research Associate

Children's Medical Center

Center for Cancer and Blood Disorders

214-456-8588

Email: mxande@childrens.com

CINCINNATI- 02

Cincinnati Children’s Hospital Medical Center

3333 Burnet Ave

Cincinnati, Ohio  45229-3039

Brenda Wong, MD

Assistant Professor, Clinical Pediatrics

Phone: 513-636-4222

Fax: 513-636-3980

Email: Brenda.wong@cchmc.org

Paula Morehart, RN

Email: Paula.morehart@cchmc.org

Clinical Research Coordinator 

PORTLAND- 03

Shriner’s Hospital for Children

3101 S.W. Sam Jackson Park Rd.

Portland, OR  97201

Barry Russman, MD

Department of Neurology

Phone: 503-221-3424

Fax: 503-221-3490

Email: brussman@shrinenet.org

Kirsten Zilke, BS, PT

Email: kzilke@shrinenet.org

Clinical Research Evaluator/Coordinator

RICHMOND- 04

Children’s Hospital

2924 Brook Road

Richmond, VA 23220

Eugenio Monasterio, MD

Phone: 804 228-5836

Fax:804-321-2728

Email: EMREHAB@chva.org 

Barbara Grillo, RN

Email: BGrillo@CHVA.ORG

Clinical Research Coordinator 

St. PAUL- 05

Gillette Children’s

 Specialty Healthcare

200 East University

St. Paul, Minnesota  55101

Stephen A. Smith, MD

Assistant Professor, Pediatric Neurology

Phone: 651-325-2314

Fax: 651-229-1767

Email: stephenasmith@direcpc.com

Colorado: (ph) 719-573-2005

(fx) 719-573-5943

Andrea Nugent, MPH

Email: anugent@gillettechildrens.com

Clinical Research Coordinator

Meredith Martinez, Coordinator

Email: mmartinez@gillettechildrens.com
651-229-3930
Fax: 651-229-1767

SALT LAKE CITY- 06

Primary Children's Medical Center

100 North Medical Drive, Suite 2700

Salt Lake City, UT 84113

Kathryn J. Swoboda, M.D.

Assistant/ Adjunct Assistant Professor, Pediatrics and Neurology

Phone: 801-585-9717

Fax: 801-588-3392

Email: Swoboda@genetics.utah.edu

Marke Wride

Email:mwride@genetics.utah.edu

Clinical Research Coordinator

PHILADELPHIA-07

The Children's Hospital

of Philadelphia
34th Street and

Civic Center Blvd
Philadelphia, PA 19104-1771

Richard S. Finkel, M.D.
Clinical Associate Professor, Pediatrics and Neurology

Office: 215-590-2763 (desk/voice mail) or -4689 (Kim)
Fax: 215-590-2223
Email: finkel@email.chop.edu

Kim Schadt, CRA/CRC

Email:SCHADT@email.chop.edu

Clinical Research Coordinator

 TORONTO [CANADA] -08

The Hospital for Sick Children

555 University Avenue

Toronto, Ontario

M5G 1X8

Jiri Vajsar, M.D.

Assistant and Associate Professor Neurology

Telephone: 416 813-5668

Fax: 416 813-6334

Email: jiri.vajsar@sickkids.ca

Lynn MacMillan, RN

Email:lynn.macmillan@sickkids.ca

Clinical Research Coordinator

PALO ALTO- 09

Stanford University

300 Pasteur Drive, Rm. A343 Stanford, CA 94305

Ching H. Wang, M.D., Ph.D.
Associate Professor
Neurology and Pediatrics
Stanford University Medical Center
Tel: 650-724-7973
Fax: 650-725-7459
Email: wangch@stanford.edu

Tony Trela

Email:atrela@lpch.org

Clinical Research Coordinator

COLUMBUS- 10

Ohio State University

121 Hamilton

1645 Neil Ave.

Columbus, OH  43210

** Scientific Site ~ Non Clinical**

Thomas William Prior, Ph.D.

Phone: 614-292-5484

Email: prior-1@medctr.osu.edu

MONTREAL [CANADA]- 11

Recherche de l'Hôpital Sainte Justine

3175 Côte Sainte-Catherine Road

Montréal, Québec

Canada H3T 1C5

** Scientific Site ~ Non-Clinical**

Louise R. Simard, Ph.D

Associate Professor Centre de Recherche

Telephone: 514-345-4931 x2867

Facsimile: 514-345-4801

Email: simardlo@medclin.umontreal.ca

St. LOUIS- 12

Washington University School of Medicine

Neuromuscular Division,

Box 8111,

660 S. Euclid, St

St. Louis, MO 63110-1002

Anne M. Connolly, M.D.

Assistant Professor in Neurology and Pediatrics

Phone: 314-362-6981

Fax: 314-362-2826

Email: connolly@kids.wustl.edu

Charlie Wulf

Email:wulfc@neuro.wustl.edu

Clinical Research Coordinator

BALTIMORE-13

The Johns Hopkins

Hospital

Pediatric Neurology

Jefferson St., Bldg 123

600 N Wolfe Street

Baltimore, Maryland 21287

Thomas Owen Crawford, M.D.

Associate Professor of Neurology

Phone: 410-955-4259,

Fax:   410-614-2297

Email:  tcrawfo@jhmi.edu

WASHINGTON, D.C.- 14

Children's National Medical Center
Research Center for Genetic Medicine
111 Michigan Ave, NW
Washington, DC 20010

 Diana M. Escolar, MD
Associate Professor of Neurology and Pediatrics

Phone: 202-884-6080
Fax: 202-884-6014
Email: descolar@cnmcresearch.org

 Robert Leshner, MD

Professor, Neurology and Pediatrics

                     Phone: 202-360-3505                    

Fax: 202-884-6014

Email: rleshner@cnmcresearch.org

Angela Zimmerman, CRC

Email: azimmerman@cnmcresearch.org

Clinical Research Coordinator

ROCHESTER- 15

Mayo Clinic

200 1^st Street SW

Rochester, MN 55905-0001

Nancy L. Kuntz, M.D.

Phone: 507-284-3351

Fax: 507-538-1747

Email: Kuntz.Nancy@mayo.edu

Wendy Korn-Peterson RN

Email:kornpeterson.wendy@mayo.edu

Clinical Research Coordinator